National Pku News Inc Headquarters
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Welcome to PKU News - PKU News
- https://pkunews.org/
- PKU News Announces Production of The Low-Phe Life by Kurt Sensenbrenner. Remember the first time you felt like someone else really understood what it was like to have PKU? Or maybe you’re still waiting for that moment…. Well get ready, because we’re thrilled to announce the launch of a new animated documentary series by filmmaker Kurt ...
National PKU News LinkedIn
- https://www.linkedin.com/company/national-pku-news
- National PKU News 82 followers on LinkedIn. Providing support & resources to patients and clinicians managing PKU and other similar metabolic disorders National PKU is dedicated to providing ...
National PKU News - NORD (National Organization for …
- https://rarediseases.org/organizations/national-pku-news/
- Founded in 1989, National PKU News publishes a newsletter three times a year and has approximately 2,000 subscribers from the United States, Canada, and 30 foreign countries. National PKU News also publishes educational materials regarding treatment of PKU. Food lists and cookbooks are also distributed by the organization.Estimated Reading Time: 1 min
NPKUA > Contact Us
- https://www.npkua.org/Contact-Us
- 2809 E. Hamilton Ave., #311 Eau Claire, WI 54701 Phone: 715-495-4008 Fax: 715-713-0138. Christine S. Brown, MS Executive Director Email Christine. Lex Cowsert, PhD
Home [npkua.org]
- http://npkua.org/
- The National PKU Alliance (NPKUA) is a vital voice for the PKU community. We work towards expanding PKU research and accelerating the timeline for a cure by investing in peer-reviewed and targeted research. We provide education and support to people living with PKU. We are the national voice for advocacy at the federal level - at the NIH, FDA ...
National PKU Alliance LinkedIn
- https://www.linkedin.com/company/national-pku-alliance
- National PKU Alliance. NPKUA’s in-person conference will be held in July 2022, but we are excited to announce our first-ever Virtual Mini-Conference for 2021! Save the date for both of these ...
Resources - PKU News
- https://pkunews.org/resources/
- Resources. These are just a few of the articles from National PKU News over the years. We’ll be rebuilding the archive in the coming months. In the meantime, if you’re looking for something specific, please contact us. 25 Years of PKU. Applying for Social Security with Phenylketonuria.
Phenylketonuria News Home - Phenylketonuria News
- https://phenylketonurianews.com/
- News Rubius Stops Clinical Development of RTX-134 Cell Therapy for Phenylketonuria. Just Published, News Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19. News Efficacy of Gene Therapy for PKU, HMI-102, Supported by Work in Mice.
Who We Are - NPKUA
- https://www.npkua.org/Who-We-Are
- Who We Are. The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure. The NPKUA was formed in 2008 by parents, grandparents, and individuals across the country just like you. We are the first national non-profit ...
NPKUA > News & Events
- https://www.npkua.org/News-Events
- The National PKU Alliance concluded our 5th biennial conference on July 8, 2018 in Atlanta, GA. This was the largest PKU conference in the world! We had 665 people in attendance from 8 countries and 35 states. To date over 1,600 different attendees have joined us for one of our conferences across the United States. General Session.
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